Our campaign to support family & care givers
Carol Whelan
Dr Carol Whelan holds the position of Consultant at the National Amyloidosis Centre. Having worked with the hATTR community for years, her videos below explain a bit more about the symptoms, care, and the potential hereditary nature of this condition
NHS specialist help for ATTR amyloidosis
Questions to ask your care team
ATTR in the family
Genetic testing for ATTR amyloidosis
Passing on genes for ATTR amyloidosis to family
Appointments during COVID-19
MDT & determining prognoses
Local & home care
Care at National Amyloidosis Centre (NAC)
Receiving medication
Progression of symptoms over time
Looking out for symptoms of ATTR amyloidosis
Jo Ablett
Dr Joanne Ablett is a clinical psychologist with experience in chronic conditions. Her videos below focus on mindfulness and mental health, as well as how to tackle some of the tougher to answer questions a diagnosis of hATTR may raise.
Talking to friends and family
Talking about intimacy with ATTR amyloidosis
Talking about funeral arrangements
Coming to terms with a new future
Preparing for lifestyle changes
Taking on day-to-day responsibilities
Mental health support options for carers
Dealing with feeling overwhelmed
Coming to terms with a diagnosis of ATTR amyloidosis
Personal challenges while caring for someone with ATTR amyloidosis
Vince Nicholas
Vince is a trustee of Amyloidosis UK. Having been diagnosed with hATTR amyloidosis himself, he is an expert in patient support and the services available to you and/or your loved ones
Financial and social support
Working after a diagnosis
1:1 support for carers of those with ATTR amyloidosis
More information on ATTR amyloidosis
Mortgages and insurance with ATTR amyloidosis
Going on holiday with ATTR amyloidosis
Meeting others who care for those with ATTR amyloidosis
Carol Whelan
Dr Carol Whelan holds the position of Consultant at the National Amyloidosis Centre. Having worked with the hATTR community for years, her videos below explain a bit more about the symptoms, care, and the potential hereditary nature of this condition
NHS specialist help for ATTR amyloidosis
Questions to ask your care team
ATTR in the family
Genetic testing for ATTR amyloidosis
Passing on genes for ATTR amyloidosis to family
Appointments during COVID-19
MDT & determining prognoses
Local & home care
Care at National Amyloidosis Centre (NAC)
Receiving medication
Progression of symptoms over time
Looking out for symptoms of ATTR amyloidosis
Jo Ablett
Dr Joanne Ablett is a clinical psychologist with experience in chronic conditions. Her videos below focus on mindfulness and mental health, as well as how to tackle some of the tougher to answer questions a diagnosis of hATTR may raise.
Talking to friends and family
Talking about intimacy with ATTR amyloidosis
Talking about funeral arrangements
Coming to terms with a new future
Preparing for lifestyle changes
Taking on day-to-day responsibilities
Mental health support options for carers
Dealing with feeling overwhelmed
Coming to terms with a diagnosis of ATTR amyloidosis
Personal challenges while caring for someone with ATTR amyloidosis
Vince Nicholas
Vince is a trustee of Amyloidosis UK. Having been diagnosed with hATTR amyloidosis himself, he is an expert in patient support and the services available to you and/or your loved ones
Financial and social support
Working after a diagnosis
1:1 support for carers of those with ATTR amyloidosis
More information on ATTR amyloidosis
Mortgages and insurance with ATTR amyloidosis
Going on holiday with ATTR amyloidosis