Paid & volunteering opportunities
We’re looking for advocates to help shine a light on the real-life challenges of living with different types and variants of amyloidosis and help shape future support, care and awareness efforts. Often working with industry partners, we have a mixture of paid and volunteering opportunities.
Current opportunities
Sharing experiences of inherited ATTR amyloidosis (or ATTR polyneuropathy)
PAID OPPORTUNITY
Amyloidosis UK is working with AstraZeneca to find people who may be interested in sharing their experience of living with inherited ATTR amyloidosis (or ATTR polyneuropathy), including early signs and symptoms, diagnosis, and ongoing care. This may lead to opportunities to speak to journalists about ATTR amyloidosis, and the lived experience of people affected by this condition.
Amyloidosis UK is working with AstraZeneca to find people who may be interested in sharing their experience of living with inherited ATTR amyloidosis (or ATTR polyneuropathy), including early signs and symptoms, diagnosis, and ongoing care. This may lead to opportunities to speak to journalists about ATTR amyloidosis, and the lived experience of people affected by this condition.
Following an informal discussion to explore interest and suitability, a contract would be put in place between each individual and AstraZeneca to ensure participation is fairly compensated. AstraZeneca will provide optional media training and full support throughout any media discussions. Amyloidosis UK will also be available to provide any additional support as needed throughout the process.
If you are interested in learning more, please click here to contact us confidentially via email.
If you are interested in learning more, please click here to contact us confidentially via email.
Familial Amyloidosis Polyneuropathy (FAP) Columnist
PAID (JOB) OPPORTUNITY
Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the familial amyloid polyneuropathy (FAP) community to join our freelance staff of patient and caregiver columnists on Amyloidosis News Today.
A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise.
All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer.
Please note you MUST be a member of the FAP community — caregiver preferred, but patients may apply for consideration — in order to apply. This is a contract position. Click here to read more and apply.
Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the familial amyloid polyneuropathy (FAP) community to join our freelance staff of patient and caregiver columnists on Amyloidosis News Today.
A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise.
All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer.
Please note you MUST be a member of the FAP community — caregiver preferred, but patients may apply for consideration — in order to apply. This is a contract position. Click here to read more and apply.
ATTR Amyloidosis Documentary
VOLUNTEERING OPPORTUNITY
Radcliffe Medical Education are producing a documentary to raise awareness of ATTR amyloidosis. They’re looking to speak with patients who are willing to share their experience, starting with an informal and confidential Zoom conversation. A small number of participants may then be invited to take part in on-camera filming.
We Are Looking for Participants Who:
- Have ATTR cardiac symptoms with / without other symptoms such as neuropathic or muscoskeletal
- Experienced delays or misdiagnosis
- Were affected by the long search for answers
Sharing your story could play a powerful role in helping others receive a diagnosis sooner and improving understanding of this condition. If you're interested in learning more, please click here to download the flyer for further details.