Knowing where to turn

For Libby, losing her nan to amyloidosis was like losing the solid person in her life. She’d been a second mother to Libby throughout her childhood and into adulthood. Having cared for her nan for over 4 years, seeing her health deteriorate was extremely difficult for Libby and knowing where to turn for help was not always easy. Opening up to her family was the first step that led to them helping her find counselling and the Samaritans. In retrospect, she wishes she would have spoken to people more regularly and openly as that was the most helpful release in the entire process.

 

In these videos, Libby, who used to care for her nan who had ATTR amyloidosis, talks to her great-uncle, David, who also has the condition. Together, they discuss the grief of losing a family member with ATTR, the impact a diagnosis has on the wider family, where you can turn to for help as a caregiver of someone with ATTR and how it can feel to care for someone with the condition.

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