Telling our daughter
- Video Description
- Video Transcript
Patrick and Trish share their very personal experiences of Pat’s hereditary amyloidosis diagnosis and the impact it had on their family unit. For Pat it is incredibly difficult to let go of the guilt he feels for that impact, even though he bears no blame. Having never had any diagnosis of the disease within his own family, it was a double whammy for Pat both having it himself and finding out that it was hereditary. Knowing that it could be passed on to his daughter was more than he could bear at the time. The most challenging part of the process, indeed the hardest conversation Pat had in his entire life, was when they told their daughter Gabby about Pat’s condition.
After being diagnosed with ATTR amyloidosis Pat, and his wife Trish were initially ‘shell-shocked’. In this and other videos they discuss the diagnosis, living with ATTR, how it feels to be a wife and also at times feel like a caregiver, and how they decided to tell their daughter, Gabby, about this hereditary condition.