Website terms and conditions

Welcome to our website. If you continue to browse and use this website, you are agreeing to comply with and be bound by the following terms and conditions of use, which together with our privacy policy and our cookie policy govern Amyloidosis UK’s relationship with you in relation to this website. If you disagree with any part of these terms and conditions, please do not use our website. The term ‘Amyloidosis UK’ or ‘us’ or ‘we’ refers to the owner of the website whose contact details can be found on our contact page. The term ‘you’ refers to the user or viewer of our website.

The use of this website is subject to the following terms of use:

the content of the pages of this website are for your general information and use only. It is subject to change without notice
this website uses cookies and may not function correctly without them. By using our website and agreeing to these terms and conditions, you are consenting to our use of cookies in accordance with our cookie policy. Please refer to our cookie policy for further information
neither we nor any third parties provide any warranty or guarantee as to the accuracy, timeliness, performance, completeness or suitability of the information and materials found or offered on this website for any particular purpose. You acknowledge that such information and materials may contain inaccuracies or errors and we expressly exclude liability for any such inaccuracies or errors to the fullest extent permitted by law
your use of any information or materials on this website is entirely at your own risk, for which we shall not be liable. It shall be your own responsibility to ensure that any products, services or information available through this website meet your specific requirements
this website contains material which is owned by or licensed to us. This material includes, but is not limited to, the design, layout, look, appearance and graphics. Reproduction is prohibited other than in accordance with the copyright notice, which forms part of these terms and conditions
all trademarks reproduced in this website, which are not the property of, or licensed to the operator, are acknowledged on the website
unauthorised use of this website may give rise to a claim for damages and/or be a criminal offence
from time to time, this website may also include links to other websites. These links are provided for your convenience to provide further information. They do not signify that we endorse the website(s). We have no responsibility for the content of the linked website(s)
your use of this website and any dispute arising out of such use of the website is subject to the laws of England, Northern Ireland, Scotland and Wales.

You may choose to prevent this website from aggregating and analyzing the actions you take here. Doing so will protect your privacy, but will also prevent the owner from learning from your actions and creating a better experience for you and other users.

Disclaimer

The information contained in this website is for general information purposes only. The information is provided by Amyloidosis UK and while we endeavour to keep the information up to date and correct, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the website or the information, products, services, or related graphics contained on the website for any purpose. Any reliance you place on such information is therefore strictly at your own risk.

In no event will we be liable for any loss or damage including without limitation, indirect or consequential loss or damage, or any loss or damage whatsoever arising from loss of data or profits arising out of, or in connection with, the use of this website.

Through this website you are able to link to other websites which are not under the control of Amyloidosis UK. We have no control over the nature, content and availability of those sites. The inclusion of any links does not necessarily imply a recommendation or endorse the views expressed within them.

Every effort is made to keep the website up and running smoothly. However, Amyloidosis UK takes no responsibility for, and will not be liable for, the website being temporarily unavailable due to technical issues beyond our control.

IP addresses and cookies

We may collect information about your computer, including where available your IP address, operating system and browser type, for system administration and to report aggregate information to our advertisers. This is statistical data about our users’ browsing actions and patterns, and does not identify any individual.

We take your privacy seriously and are committed to protecting your personal information. We aim to be clear and open about our data and security practices.

Where we ask you to provide us with any information by which you can be identified, you can be assured that it will only be used in accordance with this privacy statement, and in line with the General Data Protection Regulation (GDPR) 2018.

What information do we collect about you?

We collect information about you when you fill in an online form to:

Place orders for free or paid products or services

Apply for membership

Complete surveys or provide feedback.

This information may include:

Name, role and organisation

Contact details including email address

Demographic information such as postcode and interests.

We collect material that you proactively post or contribute to our sites and any correspondence you have with us.

We also collect information on your website usage through cookies, if your browser accepts them. Some of our websites feature tracking software – this means that if you’re a logged-in user, have filled an online form or have previously clicked a link in one of our emails, we may link your website usage information (such as pages visited, IP address, browser and device used) to other information we hold about you, such as your name and organisation.

When you contact us by email, letter or on the phone, we may also record this information on our customer relationship management system to help us process your request efficiently.

How do we use your information?

We collect information about you to manage your account, process your order or fulfil any contract we have with you.

We use information collected from your website visits to personalise your future visits and to improve the experience we provide to our online users. For example, information like the browser and device you are using helps us to maintain usable and accessible websites for all our audiences.

We also use your information to help us develop products and services that you need, and where we have a lawful basis and permission to contact you, we may use it to help us send you relevant and timely information about the help and support that we offer.

Where do we store your information?

Online forms

The forms on our website are built using a platform hosted in the US, so the information you provide to us is initially stored there. The contract we have with this provider ensures their practices comply with the EU’s General Data Protection Regulation 2018 and we regularly delete data from this system.

In the longer term your data is stored in our customer relationship management system, which is hosted on a secure server in the EU.

Website accounts

If you are a registered user of our website(s), the personal data within your account(s) is stored in secure web servers based in the EU.

You are responsible for keeping your website account password(s) confidential. We ask you not to share your password with anyone for your own security.

Security and encryption

We take great care to ensure that our websites operate at the highest security levels and that our suppliers are committed to best practice in digital security. All personal information and financial data is encrypted in transmission. However, the security of data transmission via the internet can never be 100% guaranteed, and data transmission is at your own risk.

Cookies

What are cookies and how do we use them?

The use of cookies is common practice on modern websites. A cookie is a small text file which is placed on your computer’s hard drive by a website. When you visit one of our websites, your browser checks to see if it has any cookies for it and sends the information contained in those cookies back to the site in order to tailor and improve your experience.

Our cookies record things like whether you are currently logged into your website account, to ensure you’re given the right access on each page. They make sure the display settings you’ve selected before (for example, preferred language) – or the settings associated with your account permissions – are activated correctly.

We also use third-party cookies to track how our websites are used, as well as to carry out our advertising and marketing activities.

Third-party cookies

When you visit our websites, we allow a number of third parties including Hotjar, Google, Facebook, LinkedIn and ClickDimensions to set cookies on your device to help us better understand who our users are and how they use our websites. This information enables us to:

measure our sites’ effectiveness

improve our content and user experience

make our websites more useful and relevant to your interests

promote our services and resources more usefully online

make adverts you see online more relevant to you

limit the number of times you see our promotional advertising.

For example, we use Google Analytics cookies to collect anonymous usage and visitor behaviour information – this includes:

IP address

operating system

browser type

pages visited

links you click on

services you purchase.

Google Advertising cookies help us understand the demographics and interests of our users so we can better meet their needs. If you are a user who has signed up to receive marketing emails from us, you might receive emails containing content that is tailored to your interests, based on your browsing habits collected by ClickDimensions. Similarly, Facebook and LinkedIn cookies help make our adverts more relevant to you.

Some of the services on our websites, such as adverts from CharityJob, videos from Vimeo, and sharing functions from Facebook, Twitter or LinkedIn, may place cookies on your computer to enable their service to work properly or to measure usage of their service.

To find out more about how the third parties referred to above use cookies and how to opt out of them, please review their privacy policies. You can also follow the links below:

Hotjar

Google partner sites

Google Analytics opt-outs

Facebook

ClickDimensions

Email cookies

Our emails and websites contain cookies to tell us whether emails are opened and verify any clicks through to links within an email. We use this information to help us understand how an email campaign has performed, what types of emails and content our users find interesting, and what actions our users took, so we can improve our email campaigns in the future and make our emails more relevant to you.

Can I refuse cookies?

Yes, you can use your browser settings to disable cookies. Different browsers offer different levels of control – for example you may be able to accept certain cookies and reject others, such as third party cookies.

If you refuse cookies please be aware our websites may not work smoothly for you and there will be certain parts that won’t function correctly.

You can delete the cookies stored on your computer at any time.

More information

For further information about cookies, including how to manage your cookie settings, you can visit www.aboutcookies.org or www.allaboutcookies.org.

For a full list of the cookies we use and what they do, please email info@amyloidosisuk.org

Email marketing

If you have purchased a product or service from Amyloidosis UK or have opted-in to hear about Amyloidosis UK’s products and services, we will send you information which may be of interest to you.

You have a right to stop us from contacting you for marketing purposes at any time. All our marketing emails contain unsubscribe links. You can also contact us at any time to request a change to your marketing preferences.

How long do we keep your information?

We do not keep your information for longer than necessary. We keep financial information for seven years due to legal requirements, and we delete all other personal information from our customer relationship management system if we have had no contact with you for three years.

Access to your information

You have the right to request a copy of the information that we hold about you. If you would like a copy of some or all of your personal information, you can:

Email info@amyloidosisuk.org

write to Amyloidosis UK,

We will not charge you for this service unless the request is ‘manifestly unfounded or excessive or repetitive’.

Keeping your information up to date

We want to make sure that any personal information we hold about you is accurate and up to date. Please contact us to correct or remove information you think is inaccurate.

Sharing your information with other organisations

Amyloidosis UK will not sell your information to any third party. We may share your information with third parties where we have legal duty to do so or to provide you with a service you have asked for. For example, we use a third party supplier to dispatch publications you may buy on our sites and we use secure third party partners to process financial transactions. We have contracts in place with all third party suppliers to ensure they are obligated to treat our customers’ personal data in compliance with the General Data Protection Regulation 2018.

If Amyloidosis UK is acquired by a third party, personal data held by Amyloidosis UK will be one of the transferred assets.

Other websites

Our websites contain links to other websites not run by Amyloidosis UK. This privacy policy only applies to Amyloidosis UK websites so when you link to other websites you should read their own privacy policies.

Changes to our privacy policy

We keep our privacy policy under regular review and we will place any updates on this web page. This privacy policy was last updated on 28 January 2020.

Your rights

Data protection regulations give you clear rights over how your data is used by us. You can find out more detail about your rights by visiting the Information Commissioner’s Office website’s section on individual rights.

You also have the right to report concerns or complain about our handling of your data to the Information Commissioner’s Office. Details of how to do this can be found on its website.

Privacy Policy