For Healthcare Professionals
Providing health care professionals with a comprehensive overview of amyloidosis including diagnosis, care and cutting edge research
Video & Audio
VIDEO: Understanding Amyloidosis – 3D Animation & Overview
VIDEO: ATTR Amyloidosis youtube channel
VIDEO: An overview of AL amyloidosis – Myeloma UK
VIDEO: Current AL amyloidosis treatments – Myeloma UK
PODCAST: Transthyretin amyloidosis in patients with Carpal tunnel syndrome
PODCAST: Diagnosing amyloidosis, currently available therapies & the importance of cardio-oncology
Online courses
Amyloidosis Academy
This free, short, online course delivers an amyloidosis primer in three parts. Ideal for clinicians who are new to caring for amyloidosis patients or anyone who would benefit from an overview of the disease and patient care.
Posters & printables
Echocardiography: Assessment of Cardiac Amyloidosis
British Society of Echocardiography produced poster, giving an overview of echocardiography assessment of cardiac amyloidosis.
view posterWebsites
One Amyloidosis Voice
USA based website offering a collection of up to date, high quality amyloidosis resources from around the world. Suitable for patients, carers and health care professionals.
Information for referring physicians, National Amyloidosis Centre
Alnylam have developed a website to support and empower patients and families affected by hereditary ATTR amyloidosis.
Information for researchers & HCPs, Myeloma UK
Find out more about Myeloma UK’s research programmes, clinical trials and how to apply for research funding.
Papers
Consensus recommendations on holistic care in hereditary ATTR amyloidosis
This paper presents an international Delphi survey of patient advocates and multidisciplinary healthcare professionals and provides recommendations for the holistic...
A Comprehensive Multidisciplinary Diagnostic Algorithm for the Early and Efficient Detection of Amyloidosis
Amyloidosis is a rare protein misfolding disease caused by the accumulation of amyloid fibrils in various tissues and organs. There...
Keys to early diagnosis of cardiac amyloidosis: red flags from clinical, laboratory and imaging findings
Cardiac involvement in systemic amyloidosis, due either to immunoglobulin light-chain or transthyretin amyloidosis, influences clinical presentation and is a strong...
Comprehensive Review of AL amyloidosis: some practical recommendations
Amyloid light chain (AL) amyloidosis is among the more common and more severe of the amyloidoses usually involving the slow...
The Most Predictive Red Flags for Suspecting Cardiac Amyloidosis in Patients with Hear Failure with Preserved Ejection Fraction
Evidence based infographic illustrating the red flags for suspecting Cardiac Amyloidosis in patients with Heart Failure with Preserved Ejection Fraction
Keys to early diagnosis of cardiac amyloidosis: red flags from clinical, laboratory and imaging findings
Cardiac involvement in systemic amyloidosis, due either to immunoglobulin light-chain or transthyretin amyloidosis, influences clinical presentation and is a strong...