The One Step Further disease awareness campaign and materials are being developed and funded by Alnylam in collaboration with UKATPA to provide advice and support for those caring for someone with ATTR amyloidosis.
Dr Joanne Ablett is a clinical psychologist with experience in chronic conditions. Her videos below focus on mindfulness and mental health, as well as how to tackle some of the tougher to answer questions a diagnosis of hATTR may raise.
Dr Carol Whelan holds the position of Consultant at the National Amyloidosis Centre. Having worked with the hATTR community for years, her videos below explain a bit more about the symptoms, care, and the potential hereditary nature of this condition.
Vince is a trustee of UKATPA. Having been diagnosed with hATTR amyloidosis himself, he is an expert in patient support and the services available to you and/or your loved ones.
Our campaign to support family & care givers
The One Step Further disease awareness campaign and materials are being developed and funded by Alnylam in collaboration with Amyloidosis UK to provide advice and support for those caring for someone with ATTR amyloidosis.
Dr Joanne Ablett is a clinical psychologist with experience in chronic conditions. Her videos below focus on mindfulness and mental health, as well as how to tackle some of the tougher to answer questions a diagnosis of hATTR may raise.
Dr Carol Whelan holds the position of Consultant at the National Amyloidosis Centre. Having worked with the hATTR community for years, her videos below explain a bit more about the symptoms, care, and the potential hereditary nature of this condition.
Vince is a trustee of Amyloidosis UK. Having been diagnosed with hATTR amyloidosis himself, he is an expert in patient support and the services available to you and/or your loved ones.
Jo Ablett
Personal challenges while caring for someone with ATTR amyloidosis
Coming to terms with a diagnosis of ATTR amyloidosis
Dealing with feeling overwhelmed
Mental health support options for carers
Taking on day-to-day responsibilities
Preparing for lifestyle changes
Coming to terms with a new future
Talking to family members who may have also inherited ATTR
Talking about funeral arrangements
Talking about intimacy with ATTR amyloidosis
Talking to friends and family
Carol Whelan
Looking out for symptoms of ATTR amyloidosis
Progression of symptoms over time
Receiving medication
Care at National Amyloidosis Centre (NAC)
Local & home care
MDT & determining prognoses
Appointments during COVID-19
Passing on genes for ATTR amyloidosis to family
Genetic testing for ATTR amyloidosis
ATTR in the family
Questions to ask your care team
NHS specialist help for ATTR amyloidosis
Vince Nicholas
Meeting others who care for those with ATTR amyloidosis
Going on holiday with ATTR amyloidosis
Mortgages and insurance with ATTR amyloidosis
More information on ATTR amyloidosis
1:1 support for carers of those with ATTR amyloidosis
Working after a diagnosis
Financial and social support
The One Step Further disease awareness campaign and materials are being developed and funded by Alnylam in collaboration with Amyloidosis UK to provide advice and support for those caring for someone with ATTR amyloidosis. Alnylam pharmaceuticals has had no input into content not related to the One Step Further campaign on this website.
Job Code: NP-UK-00068 Date of Prep: October 2021 Disclaimer: Alnylam Pharmaceuticals has had no input into content not related to the One Step Further campaign on this website.