Being a caregiver and a partner
- Video Description
- Video Transcript
Trish talks about the complex role of being both a partner and a carer of someone living with amyloidosis. Although Patrick’s initial care needs were minimal, as the disease gradually progressed to the present day he now needs support with basic everyday things like walking, getting dressed and standing up. Trish makes it clear that she is first and foremost Pat’s wife, even if she has had to acknowledge that she is also his carer.
After being diagnosed with ATTR amyloidosis Pat, and his wife Trish were initially ‘shell-shocked’. In this and other videos they discuss the diagnosis, living with ATTR, how it feels to be a wife and also at times feel like a caregiver, and how they decided to tell their daughter, Gabby, about this hereditary condition.