Dealing with grief

Libby and David share their experiences of the grief of losing her nan (David’s sister) to ATTR amyloidosis. Though Libby and her mum organised the funeral it took Libby a long time to process the loss. Sometimes the grief hits you most in moments of joy later on that you wish you could have shared with your loved one.

 

In these videos, Libby, who used to care for her nan who had ATTR amyloidosis, talks to her great-uncle, David, who also has the condition. Together, they discuss the grief of losing a family member with ATTR, the impact a diagnosis has on the wider family, where you can turn to for help as a caregiver of someone with ATTR and how it can feel to care for someone with the condition.

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