Support groups
All types of amyloidosis
Local support groups in several locations around the UK & Ireland have been arranging regular real life meet-ups since 2015. When Covid restrictions were announced, these groups began transitioning to Zoom meetings which have proved a tremendous success. The online version has allowed many people to join who were unable to attend the face-to-face meetings.
For more details, please contact:
Scotland (Glasgow): Mark
Surrey: Pat
South Wales, Avon, Somerset, Wiltshire, Devon & Cornwall: Lynne
Ireland: David or alternatively the Amyloidosis Ireland Facebook support group
Cardiac Amyloidosis
Hosted by Cardiomyopathy UK Support Nurse Jayne Partridge, and co-facilitated by Cardiomyopathy UK and Amyloidosis UK, this online support group is for anyone affected by Cardiac Amyloidosis (ATTR-CM). Jayne will host a session focused on ATTR-CM, followed by a general discussion and an opportunity to meet with others affected by the condition. The sessions take place using online, a link and necessary details will be sent to you prior to the meeting date.
Find out more
AL Amyloidosis
The rare disease charity Myeloma UK currently runs around 15 support groups throughout the UK that are open to those living with AL amyloidosis. These are a mixture of virtual and in-person groups. Some groups are run by patients, carers or family members; others by healthcare professionals (i.e., nurses), and each group varies in their size, the frequency they meet and the format.
Find a support group near you