Support groups
All types of amyloidosis
Local support groups in several locations around the UK & Ireland have been arranging regular real life meet-ups since 2015. When Covid restrictions were announced, these groups began transitioning to Zoom meetings which have proved a tremendous success. The online version has allowed many people to join who were unable to attend the face-to-face meetings.
For more details, please contact:
Scotland (Glasgow): Mark
Surrey: Pat
South Wales, Avon, Somerset, Wiltshire, Devon & Cornwall: Lynne
Ireland: David or alternatively the Amyloidosis Ireland Facebook support group
Cardiac Amyloidosis
Hosted by Cardiomyopathy UK Support Nurse Jayne Partridge, and co-facilitated by Cardiomyopathy UK and Amyloidosis UK, this online support group is for anyone affected by Cardiac Amyloidosis (ATTR-CM). Jayne will host a session focused on ATTR-CM, followed by a general discussion and an opportunity to meet with others affected by the condition. The sessions take place using Zoom, a link and password will be sent to you prior to the meeting date.
Reserve a spot
AL Amyloidosis
The rare disease charity Myeloma UK currently runs around 15 support groups throughout the UK that are open to those living with AL amyloidosis. These are a mixture of virtual and in-person groups. Some groups are run by patients, carers or family members; others by healthcare professionals (i.e., nurses), and each group varies in their size, the frequency they meet and the format.
Find a support group near you