NHS Amyloidosis Information
NHS Web page giving a general overview of amyloidosis and the different types of the disease.
One Amyloidosis Voice
USA based website offering a collection of up to date, high quality amyloidosis resources from around the world. Suitable for patients, carers and health care professionals. All types of amyloidosis are covered.
Amyloidosis Alliance
International website providing information and resources for all types of amyloidosis and in a range of languages including English, French and Spanish.
Amyloidosis Research Consortium (ARC)
USA based organisation, their website offers a wealth of information and resources for all types of amyloidosis for patients, carers and health care professionals.
Symptom tracker App
Free app for tracking amyloisosis symptoms. Designed for ATTR patients
Family Dialog Tool
Free app to help people affected by hereditary amyloidosis discuss the condition with family members who may also have inherited the disease.
The hATTR Bridge
Website bringing together information and resources for patients and carers affected by ATTR amyloidosis.
AL Amyloidosis Essential Guide
Printable guide to AL amyloidosis including information about diagnosis, symptoms and treatment. Produced by Myloma UK.
Myloma UK Website
Myloma UK’s web page with information about AL amyloidosis, it’s diagnosis, symptoms, treatment.
AL Patient Story from the British Heart Foundation
A short, real-life story of an AL amyloidosis patient who describes her diagnosis, treatment and how she has adapted her life since she was diagnosed.
AA Amyloidosis Patient Information Leaflet
Printable information leaflet for AA amyloidosis patients providing an overview of the disease and it’s treatment.
Cardiomyopathy UK
A charity offering resources and support to anyone living with cardiomyopathy, including amyloidosis. Their website has a wealth of information including advice on lifestyle and exercise, emotional wellbeing, benefits and financial issues.
They also operate a nurse led helpline available 8:30am-4:30pm Monday to Friday. Helpline: 0800 018 1024
Living with amyloidosis
Resources to support patients, carers and health care professionals with the long-term and everyday challenges of living with amyloidosis
NHS Amyloidosis Information
NHS Web page giving a general overview of amyloidosis and the different types of the disease.
One Amyloidosis Voice
USA based website offering a collection of up to date, high quality amyloidosis resources from around the world. Suitable for patients, carers and health care professionals. All types of amyloidosis are covered.
Amyloidosis Alliance
International website providing information and resources for all types of amyloidosis and in a range of languages including English, French and Spanish.
Amyloidosis Research Consortium (ARC)
USA based organisation, their website offers a wealth of information and resources for all types of amyloidosis for patients, carers and health care professionals.
Symptom tracker App
Free app for tracking amyloisosis symptoms. Designed for ATTR patients
Family Dialog Tool
Free app to help people affected by hereditary amyloidosis discuss the condition with family members who may also have inherited the disease.
The hATTR Bridge
Website bringing together information and resources for patients and carers affected by ATTR amyloidosis.
AL Amyloidosis Essential Guide
Printable guide to AL amyloidosis including information about diagnosis, symptoms and treatment. Produced by Myloma UK.
Myloma UK Website
Myloma UK’s web page with information about AL amyloidosis, it’s diagnosis, symptoms, treatment.
AL Patient Story from the British Heart Foundation
A short, real-life story of an AL amyloidosis patient who describes her diagnosis, treatment and how she has adapted her life since she was diagnosed.
AA Amyloidosis Patient Information Leaflet
Printable information leaflet for AA amyloidosis patients providing an overview of the disease and it’s treatment.
Cardiomyopathy UK
A charity offering resources and support to anyone living with cardiomyopathy, including amyloidosis. Their website has a wealth of information including advice on lifestyle and exercise, emotional wellbeing, benefits and financial issues.
They also operate a nurse led helpline available 8:30am-4:30pm Monday to Friday. Helpline: 0800 018 1024