Meet the Team

David was diagnosed with Hereditary ATTR Amyloidosis in 2018, after a long and challenging journey to receive a correct diagnosis—an experience shared by many patients and families. Since then, he has become a passionate advocate for raising awareness of all types of amyloidosis, particularly now that treatments are emerging to slow disease progression.

He serves as trustee and secretary of Amyloidosis UK, as well as treasurer on the board of the Amyloidosis Alliance, a global network supporting patients, families, and clinicians. With a 42-year career in business management behind him, David now dedicates much of his time to advocacy. Outside his commitments, he enjoys travelling, spending time with family and friends, and keeping fit through walking—though no longer up mountains.

Vince was diagnosed with Hereditary ATTR Amyloidosis in 2008, shortly after the passing of his mother from the same condition. In 2010, he underwent a liver transplant—the only option available at the time to slow disease progression, before medical treatments became accessible.

As a founding member of Amyloidosis UK, Vince continues to serve as trustee and treasurer. He has witnessed major progress in diagnosis and treatment over the years, bringing hope to patients and their families. His goal remains to champion improvements in the holistic care and support available for all those living with amyloidosis. In his spare time, Vince enjoys cooking, spending time with his family, and playing music in a local orchestra.

Paul was diagnosed in 2015 with ATTR Wild Type Amyloidosis and is currently taking part in a clinical trial at the Richmond Clinic. Since his diagnosis, he has worked to raise awareness of amyloidosis among the medical profession, particularly cardiac specialists, as well as supporting patients and carers post-diagnosis.

Paul is trustee and current chair of Amyloidosis UK, guiding the charity’s mission of improving awareness, research, and patient support. With a background in engineering, he previously ran a successful hydraulics company. A keen cyclist, Paul once completed the London to Brighton ride three times and cycled from London to Paris in 2012. He continues to cycle—now with the help of an electric bike—alongside travelling and holidaying in Europe.

Julian was diagnosed in 2024 with ATTR Wild Type Amyloidosis and is participating in a clinical trial at The Richmond Clinic. This innovative study is investigating how to alter the DNA of the amyloid protein to reduce its ability to deposit on the heart wall.

With a background in advertising and running a successful property development company, Julian uses his expertise to support Amyloidosis UK in raising awareness of the disease within the medical profession—particularly among cardiac specialists—by attending and speaking at conferences in the UK and Europe. A keen sailor and tennis player before diagnosis, Julian now enjoys golf, travelling on short trips, and attending the theatre.

Carlos is a trustee of Amyloidosis UK. More details will be provided soon.

I have been working with Amyloidosis UK since the beginning of 2021. I manage projects and campaigns, liaise with other organisations and patients, work on the charity’s social media output and help with many other aspects of running the organisation. Although I have not worked with amyloidosis before I have been a nurse for almost 20 years, I have some molecular biology training and am also a Pilates teacher- all of which all help me to understand the many aspects of life with amyloidosis. It is a real privilege to work for Amyloidosis UK and to help support ATTR amyloidosis patients in the UK.