We are excited to announce that Amyloidosis UK has partnered with Cardiomyopathy UK to launch the first online support group specifically for individuals affected by cardiac amyloidosis.
Whether you are newly diagnosed, living with ATTR-CM, or caring for someone with the condition, this support group offers a welcoming community where you can discuss challenges, ask questions, and find comfort among those who truly understand.
How to join
The first sessions took place in April and June with the next scheduled for Thursday, 11 September. If you or a loved one is interested in participating, simply reserve a free spot on the event page.
No-one should face amyloidosis alone. By joining this support group, you’ll have the opportunity to connect with others who share your journey and gain access to valuable resources and insights.
We look forward to welcoming you on 11 September!
1 comment
Kay O Donoghue
I have AL Amloidisis with cardiac and kidney involvement..I was diagnosed in 2016 in Royal Free Hospital..I live in Co. TIPPERARY, Ireland 🇮🇪.
I am in relapse after 5 really good years
.a new drug is being looked for at present.