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October 4, 2025

Midlands Patient & Family Event

An afternoon of learning and support for people living with amyloidosis.

Featuring expert speakers,  discussions, valuable resources and contacts to enhance wellbeing.

Sunday, 2nd Nov · 1 pm – 6 pm · Edgbaston Park Hotel, Birmingham

Aims

  • To empower patients and their families with clear, accessible, and evidence-based information about amyloidosis.
  • To provide a supportive environment that encourages sharing of experiences, challenges, and coping strategies.
  • To strengthen the partnership between patients, caregivers, healthcare professionals, and patient advocacy groups.
  • To raise awareness of available treatments, clinical trials, and supportive care resources.
  • To reduce feelings of isolation by building a sense of community among attendees.

Speakers

Amyloidosis UKKate Taylor
David Gregory
University Hospitals BirminghamKelly Fitzpatrick
Dr Will Moody
Dr Jenny Pinney

Agenda

13.00Arrival, registration, refreshments
Welcome & Introduction to Amyloidosis UK
Amyloidosis: What you need to know
Introduction to the NHS England Midlands Amyloidosis Service
14.30Break & refreshments
15.00Breakout Q&A sessions on different topics
17.00Free time for networking (including refreshments)
18.00Event closes

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